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Rare Disease Day 2025
This is technically our 14th “Rare Disease Day,” since our PTEN diagnoses came in the fall of 2011, but if I am fair, the entirety of 2012 was such a blur that I feel like this is more like the 13th...
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Perfectly Imperfect- Orchids and Life Lessons
I don’t remember when I got the first orchid. I don’t remember who gave it to me or even what color it was. I remember it was after looking through droves of flower photos from my father’s images...
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