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Puppy Steps

It was a walk. Outside. On the long lead. And it went really well. Not perfect, but so very much better. The distractions are still a little disconcerting, but her focus and response to Meghan is...

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And it’s a…Hernia!

Now that I have your attention, I promise, you’ll get to the end of this episode of “You Can’t Make it Up!” The day started with another successful training for Meghan and Ella at Barnes and Noble....

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Exhale…

Meghan and Ella have been settling in so well together.  Jax and Ella are fast friends.  April and Ella will be polite acquaintances.  Ella is playing, running, eating, and sleeping.  She is adjusting...

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Covid in the House

Sometime early March I had decided I was going to schedule a vaccination against Covid-19. I am not sure what made that decision crystalize. I have been teaching 4th grade remotely this year, deemed...

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Two Valium and a Swig of Wine-because sometimes deep breaths are just not...

It has been that kind of a week month YEAR. Life continues to happen at a pace that has me barely keeping my head above water. I often feel like it’s a dance around the land mines. All day. Every day....

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Beating Cowdens – Ten Years 250K Hits, and Counting

Spoiler Alert- Rare Disease DOES change you I watch the traffic counter on our blog click real close to 250,000. A quarter of a million hits on little excerpts of this messy road. It blows my mind...

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The Medical Bell Curve – Where do you fall?

Our healthcare system is broken. It is so desperately broken that I am not sure it can be repaired. But, I truly hope we are somewhere grooming a generation who will try. It is broken in so many...

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Patient Blaming

May of us cringe when we hear “victim blaming.” It happens often to make us feel better. somehow we are able to convince ourselves that that horrid crime, often domestic violence or assault happened...

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#beatingcowdens Goes to College!

There are normal feelings I have right now. Like when I look at my adult packing for college and all I see is this. I have all the normal swings of emotion of watching your baby grow up. I feel all...

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The Calendar …

My birthday is a tricky time of year. This week is emotionally charged always. Emotions are right at the top. I simultaneously love and abhor my connection to dates. It is a blessing and a curse that...

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Parallel Truths

This is the day when we often sit and think about sad things. It is a day we often reflect on all the reasons we can’t wait to be done with the current year, wishing better for all in the next. I have...

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Love, Mom

Before Meghan left for college last August I worked to think of creative things to send with her. One of the things I decided on was a playlist. Sure, we have some overlapping music tastes, but it was...

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Ugly Cry

I cried this weekend. Not just the tears down your face from a sad movie cry, but the gut-wrenching sobbing cry that leaves your head pounding and your eyes swollen shut. And, it wasn’t just once. It...

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The Rain…

I walk past a sign in my hallway regularly. It has the familiar phrase, “Life is not about waiting for the storm to pass, it’s about learning to dance in the rain.” I think about other cliche phrases...

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Gratitude, Grace, and Grit

May is PTEN Awareness Month. Gratitude is a practice I try to engage in regularly. There is so much to be grateful for. My child is thriving despite countless challenges. I know of too many parents...

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What if it all works out?

What if? That is hands down my least favorite question. It is one that puts my head in places I’d rather it not go. I believe very much that a positive mindset can have a positive impact on your...

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How was your summer?

It’s my least favorite question connected with back to school. It sometimes makes me feel like I failed when I have nothing dynamic to report. And if I were to reply with honest answers, I would...

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This is 49!

Some days I look in the mirror and wonder who that lady is. Some days I hop on a scale chasing numbers that were there 30 years ago. Some days I am self-conscious about the gray hair and crows feet...

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Unanswered Prayers

Sometimes my unanswered prayers end up being what I am most grateful for. Sometimes what happens is not what’s “right.” Sometimes we can fight to change it. Sometimes we have to stop fighting and move...

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The Future of Healthcare

I could write for days and never fully tell all that is spoken through those eyes. I could detail wars, physical, mental, and emotional that would have decimated those who think they understand...

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